Autosomal Dominant Polycystic Kidney Disease – How To Help?

Autosomal dominant polycystic kidney disease is a genetically caused condition in which causes cysts on the kidneys. Some other organs including the liver, pancreas and even brain can also become affected as the disease progresses. Around half of all people who develop this malady end up with end stage kidney disease, requiring renal transplant. There is no cure for autosomal dominant polycystic kidney disease, however treatment and lifestyle changes can help to slow progression and possibly prolong life.

For instance, it has been suggested that a low protein diet may help to delay the disease. Since most patients with this condition are already on a renal failure diet, this step doesn’t require a vast array of changes. In addition, treating existing hypertension might also help, along with avoiding salt. Studies have also suggested that refraining from caffeine might possibly reduce the formation of cysts. This is still unproven; however an overabundance of caffeine in the diet isn’t good for your body, or your kidneys.

Beyond lifestyle changes, regular treatment options to exist to reduce polycystic kidney disease symptoms. Acetaminophen is often used as a pain remedy, however if pain becomes severe, it may require surgery for cyst removal, although this will not slow disease progression. Autosomal dominant polycystic kidney disease for many, eventually can lead to kidney transplantation.

Meeting kidney donor requirements is becoming much easier given technological advances, and these days it doesn’t have to be a sibling or parent to give you a kidney. However, be advised that it is still a long and tolling process, that still could result in formation of cysts on your new kidney. This is why consulting with your physician often through every stage of your disease is abundantly important. He or she will work with you to develop lifestyle and pain treatment options that fit your needs, along with future planning as your autosomal dominant polycystic kidney disease worsens.
There are also many counseling and support options available to you, such as the American Association of Kidney Patients that will allow you to connect with people that can relate to you and your condition.

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